Patient Reported Outcomes (PRO) Working Group

GROUP Survivorship
PROJECT SPAN 2024
DATE 23/07/2024

Background

The COSA Survivorship Group convened a national Think Tank in August 2018, focusing on patient-reported outcomes (PROs) in cancer survivorship care and follow-up. The PRO Working Group was established in 2019 in response to the Think Tank recommendations to provide national leadership to determine a coordinated approach to PRO monitoring in cancer care, recognising PROs as essential measures of patient well-being and treatment efficacy. The PRO Working Group, led by Professor Bogda Koczwara, comprises multidisciplinary experts from oncology, survivorship, health services research and patient advocacy with interest and expertise in PROs in cancer.

Details on this project

Bogda Koczwara
Patient Reported Outcomes (PRO) Working Group Chair

PROActive Workshop July 2024

PRO Think Tank August 2018

Patient-reported outcomes and personalised cancer care

Priority recommendations for the implementation of patient-reported outcomes in clinical cancer: a Delphi study

The use of patient reported outcome measures in oncology clinical practice across Australia and New Zealand

COSA Survivorship Research Fellowship: Dr Carolyn Mazariego

2023 COSA ASM PROActive workshop

2022 COSA ASM symposium No-one left behind. Ensuring equity in PRO use in clinical care

2021 COSA ASM presentations

Some current tools and guidelines applicable to clinical cancer practice are listed here for information:

- ComPASS Comprehensive Problem and Symptom Screening

- ESAS – Edmonton Symptom Assessment System

- Supportive Care Needs Assessment Tool for Indigenous People (SCNAT-IP)

- ESMO Clinical Practice Guidelines: The role of PROs in the continuum of cancer clinical care

- Canadian national position statement on patient-reported outcomes

- CQuest PRO Outcome Measure translations and cross-cultural validations

- Implementation of Patient-Reported Outcomes in Routine Medical Care

- Cancer Care Ontario Symptom Assessment Tools

- The PROTEUS Guide to Implementing Patient-Reported Outcomes in Clinical Practice: A Synthesis of Resources (the PROTEUS-Practice Guide)

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Survivorship Group Collaborative Webinar Series

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COSA is pleased to endorse the Survivorship Care for People Affected by Advanced or Metastatic Cancer: MASCC-ASCO Standards and Practice Recommendations. bit.ly/44JLN0A Read the endorsement paper from @DrNicolasHart and his co-authors at bit.ly/3GINjIi

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Our Nutrition Group is hosting a Speed Networking Event on Fri 25 July for COSA members to get to know leading dietitians and researchers including Jane Stewart, Merran Findlay & Emily Jeffery. Connect with COSA members interested in nutrition and cancer! bit.ly/4nmK8GU

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The Tom Reeve Award recognises a national leader who's made significant contributions to cancer care. The award will be presented at COSA-IPOS 2025 in Adelaide in November where the recipient is invited to deliver an address. Nominations closing 14 July. bit.ly/3hIXWcV

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